一位NF11型神经性纤维瘤病女孩的故

这是一个I型神经性纤维瘤病女孩的故事：

ThisistheNeurofibromatosis(NF1)storyofagirlnamedIzzy.

Hey!I’mIZZY.

I’m18yearsoldandasenior.

IhaveNeurofibromatosisNF1.

Thereare2typesofNeurofibromatosis.Type1andType2.

IhaveType1becauseofmyNF1spotsonmybodycalledCaféAuLaitSpots.

NF1cancausetumorstogrow.7%ofthetumorsare…CANCEROUS.

Idon’thaveanytumorthankfully,but…NF1didcausemetohaveScoliosis.

Ihadtwooperationstocorrectit.OnewasaSpinalFusion,theotherwastocorrectamistakemadeinthefirstoperation.

Today,Ihave2Rodsand19Screwsinmyback.

NF1effectsmeoften.

But…Istaystrongandyoushouldtoo!

Don’tgiveup.Remember...

Suicidedoesn’tendthepossibilityoflifegettingWORSE.ItendsthepossibilityofitgettingBETTER!And...

Yourskinisn’tpaperdon’tcutit.Yourfaceisn’tamaskdon’tcoverit.Yourbodyisn’tabookdon’tjudgeit.And…Yourlifeisn’tafilmdon’tendit.

Someonecaresaboutyou.

Ido.

SmilebecauseyouareBEAUTIFUL!

StaystrongbecauseIwill.

Ifyouupset,sadorhavingabadday,call1---.It’saHELPhotline.

Onemorething…

Reachforthestarssoifyoufallyourlandonacloud.

Ifyouneedtotalk,myINBOXisalwaysopen!

Andthat’smyNF1story.

无论疾病与痛苦，每一位孩子都是上天赐予的天使，上天相信只有我们才能好好照顾她，以及她的病痛。

珍惜我们每一个孩子，守住眼前的一切！